SOCIETY FOR MUCOPOLYSACCHARIDE DISEASES

Values shown as filed in the company's annual accounts. — indicates the figure wasn't present under that line item in that period. About these numbers

Margins divide P&L lines by turnover. Gearing is liabilities over total assets. Current ratio is current assets over creditors falling due within one year. Interest cover is operating profit over absolute finance costs. Sector-distribution context coming next.

Accounting basis

FRS 102

Reporting scope

Consolidated group

Auditor

Xeinadin Audit Limited

Audit opinion

Unqualified (clean)

Going concern

Affirmed

“In auditing the financial statements, we have concluded that the trustees' use of the going concern basis of accounting in the preparation of the financial statements is appropriate.”

Group structure

1. SOCIETY FOR MUCOPOLYSACCHARIDE DISEASES · parent
   1. MPS Commercial Limited 100% · England and Wales · patient management fees and survey research
   2. Rare Disease Research Partners Limited 100% · England and Wales · dormant

Significant events

• “This year was one of the most challenging in the MPS Society's history but as I reflect on how we dealt with those challenges, many of which could not have been envisaged, I can see so many new ideas which were generated and I feel proud of the diverse approach we have adopted to support our community as we react to their changing needs.”
• “The exciting and very successful Fabry Matters Conference 2024 was a major highlight, collecting data and informing the patient community in a single productive weekend.”
• “We expanded the Facebook Support hub with the addition of WhatsApp based social hubs - these have really taken off under the guidance of the Support and Advocacy team.”
• “In March we launched the Weekly Lucky Lottery which was a new venture for fundraising. So far 90 people are playing, and we've had 37 winners.”
• “It was a record year for the London Marathon raising over £45,000, an incredible amount.”
• “We joined the Kind 2 Mind campaign during MPS Awareness Week and thanks to pledgers raised a super £28,000, and we also exceeded expectations for the Big Give Christmas Campaign raising a further £32,000.”
• “It's been a busy year for our clinical advisory committee, CSAC. We are delighted that Professor Simon Jones and Dr David Whiteman have joined the committee, bringing their expertise to the team.”
• “In 2024 we welcomed 68 new members to the MPS Society who join for free and are given specialised practical and emotional support for their whole family.”
• “In 2024 we held nine events bringing more than 700 people together. We offer opportunities for affected children, young people and their parents to spend a day with people just like them and we reach out to our bereaved community to come together and share memories and experiences.”
• “In 2024 our Clinical Scientific Advisory Committee (CSAC) paid out £81,934 in grants and committed a further £129,766 to fund future research.”
• “We ran a virtual CSAC open day at the start of October which included: presentations about what a biomarker is and how we measure it by Kevin Mills, an update on Brian Bigger's research, a look at a study to improve the quality of life of adults with Fabry disease using exercise by Sarah Gosling and Dan Bailey as well as an overview of what is happening in Rare Disease Research Partners (RDRP) by Alex Morrison.”
• “In 2024, we received £22,000 from regular donations and payroll giving schemes. We also received over £10,000 from donations and tributes in memory of loved ones and over £7,000 in one-off donations.”
• “We are pleased to have raised over £87,000 from challenge events in 2024. This included a record year for the London Marathon which raised £45,000.”
• “This year was our best ever Big Give Christmas Challenge raising over £32,000 for our community events.”
• “Our fundraising target was smashed this year and raised over £28,000. This was generated from a variety of events including our Kind2Mind appeal, schools, nurseries and specialist centres taking part in Wear it Blue, cake sales and coffee mornings, a pub quiz, a golf day, a football presentation, a half marathon, some online fundraisers and donations from some very kind individuals and companies.”

Auditor, going-concern and subsidiary information is drawn from the narrative of the latest annual accounts. About these numbers

Filings

2

last 12 months

Capital events

0

last 24 months

Officers appointed

0

last 12 months

Officers resigned

0

last 12 months

Direct counts from the register. No score, no rating — see the Filing timeline for the underlying events.

• Turnover

  -9.8%

  £958,230 → £864,051

• Cash

  +61.8%

  £731,411 → £1,183,776

• Net assets

  +3.1%

  £2,345,950 → £2,418,613

• Employees

  -13.5%

  37 → 32

• Wages

  -10.9%

  £1,215,268 → £1,082,478

Each % is (latest − prior) ÷ |prior| for the line item as filed. The comparison is only shown when the latest and prior accounts cover broadly equal-length periods — short or long stubs (typical around incorporation or a year-end change) are suppressed rather than misrepresented. Lines a company doesn't report are omitted. About these numbers